What is the survey about? This survey has been prepared by the CHSIG of the EHMA to gather updated information about the impact that Cluster Headaches has on the work life of the CH sufferers. How much time will it take? This survey consists of 30 questions, some of which have tick-box options. It should take around 12 minutes to complete. The survey will be open until 28th February. How many languages are available? The survey is available in 10 languages! English, German, Italian, Spanish, French, Swedish, Danish, Dutch, Polish and Finnish Will my identity be published? The survey is anonymous! To learn everything about the survey, how the responses will be used, if you can take part in... it please visit this link!
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[CHAD] organised together with the EMHA Cluster Headache Special Interest Group [CHSIG], which will be held on March 21 st in Paris. The draft programme is attached. The theme for this year will be “ Shaping a painless future for Cluster Headache”. During the event different important topics regarding CH will be discussed such as personal experiences, current situation and difficulties, new treatments and possibilities as well as alternative therapies. Moreover, a document called “Paris Declaration” will be signed by the attendees and released at the end of the day. This document, which would have been previously elaborated by the CH SIG members during the brainstorming session, will contain the unmet needs of CH patients and the goals to be achieved in the near future. In addition, we think this is a key opportunity to meet with industry representatives, members of other patient groups, eminent specialists and have the possibility to share our concerns and hopes, so as to find the best way of strengthening our bonds in order to achieve more easily our common goals. You can also download the signed PARIS DECLARATION #forCHfuture