EFPIA “UNLOCKING TOMORROW´S CURES”

start 22/05/2018 18:30 end 25/05/2018 00:00 | Events |

The event is kindly hosted by MEP Lieve Wierinck together with MEP Adina Valean and MEP Françoise Grossetête The pharmaceutical industry is on the cusp of delivering ground-breaking treatments for patients. From CAR-T to cell therapies and the HIV vaccine, innovative therapies have the potential to revolutionise patients’ lives. During a series of “fireside chats” we will discuss the following themes: - How collaboration in research can advance the development of treatments and accelerate patients’ access to innovative therapies - What is the role of incentives in sustaining innovation in healthcare in Europe - How we can further empower patients to contribute to the innovation and medicines development process - How we can introduce future innovations into healthcare systems in a sustainable way More information  

AGENDA Migraine World Summit 2018

start 18/04/2018 00:00 end 26/04/2018 00:00 | Events |

The largest patient online event in the world for headache returns this April 18-26. The Migraine World Summit will bring together over 30 top experts, doctors and specialists to share new treatments, research and strategies for migraine and chronic headache. It is available to anyone with an internet connection.

Cluster Headache Awareness Day 2018

start 21/03/2018 14:00 end 21/03/2018 22:00 | Events |

[CHAD] organised together with the EMHA Cluster Headache Special Interest Group [CHSIG], which will be held on March 21 st in Paris. The draft programme is attached. The theme for this year will be “ Shaping a painless future for Cluster Headache”. During the event different important topics regarding CH will be discussed such as personal experiences, current situation and difficulties, new treatments and possibilities as well as alternative therapies. Moreover, a document called “Paris Declaration” will be signed by the attendees and released at the end of the day. This document, which would have been previously elaborated by the CH SIG members during the brainstorming session, will contain the unmet needs of CH patients and the goals to be achieved in the near future. In addition, we think this is a key opportunity to meet with industry representatives, members of other patient groups, eminent specialists and have the possibility to share our concerns and hopes, so as to find the best way of strengthening our bonds in order to achieve more easily our common goals.   You can also download the signed PARIS DECLARATION   #forCHfuture

Making Visible The Invisible On Headache Pain

start 24/01/2017 10:00 end 24/01/2017 12:00 | Events |

On the 24 of January 2018, from 10.00 to 12:00, will be celebrated inside the European Parliament (Room ASP A3F383) a meeting focused on: "Making Visible The Invisible On Headache Pain: Sharing Successful Experiences Across Europe".    Register here for the 24 of January 2018.   The initiative is promoted by Active Citizenship Network in partnership with the European Headache Alliance (EMHA), and it will be hosted by the MEP Sofia Ribeiro, one of the supporters of the Interest Group “European Patients’ Rights & Cross-Border Healthcare”. The aim of the event is to continue to explore recent achievements and good practices on the management of some primary headaches - in particular migraine and cluster headaches - across Europe, and  demonstrate what this community can offer in terms of raising awareness about the phenomenon, enhancing the body of knowledge of positive cases and successful experiences, and strengthening commitment to this topic. The event will be realized thanks to the support of Teva Pharmaceuticals Europe B.V

Patient Solidarity Day 2017 is on December 2

start 02/12/2017 00:00 end 02/12/2017 00:00 | Events |

IAPO is organising a Patient solidarity Day the 2nd of December! If you’re taking part in a Patient Solidarity Day activity, upload your photos from activities and events to help raise awareness and inspire others and at the same time stand the chance of being next year’s feature photo. For more information go in to IAPO´s website Keep supporting the Patient Solidarity Day campaign in other ways; Sign up to the Patient Solidarity Day Thunderclap Promote Patient Solidarity Day on social media – like, share and retweet using #PSD2017 Share the campaign key messages on social media using the #PSD2017 Promote the campaign on your organization’s website by including the day on your calendar of events. Share PSD2017 poster and flier on social media and you websites using #PSD2017

EFNA´s Training iniciatives in SPAIN

start 26/10/2017 00:00 end 27/10/2017 00:00 | Events |

European Federation of Neurological Associations Training initiatives for neurology advocates❕❕ #TINA #campusdiversia#EMHAumbrella  The 26th 27th of October 2017, the European Federation of Neurological associations develop together with the support of Elena Ruiz de la Torre, president of European headache alliance, an extraordinary Training initiative for Neurological Associations in Valencia ,Spain. This event took place in “ Campus Diversia”, Yátova, Valencia, Spain, a place where job training and environmental employment is fostered. An inter-university collaborative project to enhance the capabilities of people. A perfect place for the occasion. 30 different national patients organizations from all around Spain, learning about HTA and Communication all together. Different topics were met, such as an introduction to pricing access and reimbursement, the importance of the implication of patients in HTA, how medicines are approved in the EU, Best practice multi-Stakeholder collaboration in influencing the regulator and payor decision-making, the EMA process of medicines approval, and much more. In the afternoon session, Mr, Denis Costello, a communications specialist talked about how to optimised social media to influence Decision-Makers. How Social Media help the organizations to raise awareness and reach existing and new audiences, and also how they help to generate and disseminate evidence. Each and every one of the participants in the workshop agreed that there is still much to be done, and a long way to go to join forces and be heard. They have a significant lack of information, to understand well the process of approval of medicines. In which ways are patient associations involved in these processes. It is true that in Spain, there are many discrepancies regarding the medicines that are financed in the different autonomous communities, so that medicines that are financed in certain communities may not be in others. In addition, this situation can be aggravated even within the same [...]

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