Patient Advocacy in the Digital World

EMHA Communication Expert, Andrea Rodriguez flew to Brussels in order to attend the “Patient Advocacy in the Digital World” workshop organized by EFNA. A three day Congress plenty of interesting talks and workshops.

The European Federation of Neurological Associations [EFNA] is an umbrella group representing 20 pan- European neurology patient groups. Their slogan ‘Empowering Patient Neurology Groups’. EFNA’s aims are to improve the quality of life of people with neurological disorders, their families and carers by working in four strategic areas: Advocacy, Empowerment, Awareness, and Engagement.

EFNA is focusing attention on young neurology patients during 2018. As they say, their goal is to create a programme that assists young people in becoming advocates for their own disease areas.

The ‘Patient Advocacy in the Digital World’ workshop, took place in Brussels the past days of, November 19th – November 21st, as part of EFNA’s Training Initiatives for Neurology Advocates [TINA] programme.

The workshop covered topics such as:

  1. How to Influence Change and Lead in Your Community
  2. Social Media for Advocacy and Building an Online Community
  3. Working with Patient Organisations
  4. eHealth and Technology-enabled Solutions
  5. Artificial Intelligence for Europe, Ethics and the Emerging Issues in eHealth and a Value Assessment of Digital Products.

On Day 3 the group attended to a meeting of the MEP Interest Group on Brain, Mind, and Pain, taking place at the European Parliament.

Three days full of young patient advocacy work and learning from personal experiences and what´s most important, moving forward to a better future for neurological disorders altogether.

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