EMHA Executive Director Mrs. Elena Ruiz de la Torre flew the past month of August to Zurich in order to attend the first European Patient Advocacy Council F2F meeting where the topics for discussion were: 1. “Addressing inequalities in the patient voice across Europe”. 2. “Demonstrating the Impact of Patient Engagement”.
The past September 6th the European Migraine and Headache Alliance team flew all the way to London to assist to the 17th Biennial Migraine Trust International Symposium. It was an amazing and exciting event full of people interested in finding ways to give a brighter future to migraineurs. We were beyond than an honor to be part of this symposium and represent the patients' community in such an important Congress. You can find below some images of what we lived last week, already looking forward to the next MTIS!
EMHA Executive Director Elena Ruiz de la Torre along with Professor Peter Goadsby was in charge of giving the first speech at the opening ceremony of MTIS 2018. We couldn´t be more proud and honored of being able to represent the patient community in such an important event! Over 800 assistants have visited the Congress so far!! We keep searching for ways to give a voice to patients, raise awareness and educate everyone about this condition, which so many people suffer from and sadly the number keeps increasing day by day.
Stephani Sutherland, PhD, is a neuroscientist, yogi, and freelance writer in Southern California. Migraine and other severe headache disorders affect about a billion people worldwide each year, but awareness of these conditions is insufficient, and sufferers are often stigmatized by healthcare providers and by society in general. As a result, people often go years without a diagnosis or do not receive appropriate treatment. And, the personal preferences of patients are seldom considered in current treatment guidelines. A neurological disease Everyone has experienced a headache at some time in their lives, be it from the flu, a head injury, or simply [...]
This year Migraine Day of Action will be held on September 12th and EMHA has created an initiative called #MigraineBrighterFuture ¿What is #MigraineBrighterFuture? It´s an online campaign which involves patients all around the globe and everybody who would like to help on raising awareness about Migraine. ¿How to participate? September 12th participants will need to upload a photo on social media with a caption including the hashtag #MigraineBrighterFuture and a sentence which starts with the followings words: "For the chance to...". This sentence needs to be some kind of action that sounds completely normal and easy to accomplish for anyone who reads it [...]
Trupti Gokani, MD is a neurologist and author of The Mysterious Mind. She practices a blend of Western and Eastern medicine which focuses on the root cause and holistic treatment of a patient, combined with functional neurology. Dr. Gokani told us about the significance of the gut-brain connection in her recent interview. As neurologists, Dr. Gokani says, we study the central nervous system. "We look at the brain that's in our head, the spinal cord, and the peripheral nervous system, which includes the autonomic, sympathetic, and parasympathetic nervous systems. We don't focus on that other system, which is the enteric [...]
Spanish researchers have discovered that the role of this sex hormone around the trigeminal nerve could be key in migraine episodes, which could explain why woman suffer from them more often. Sex hormones could play a key role in the onset of migraine episodes, according to a study published today by the team of Antonio Ferrer Montiel, a researcher at the Miguel Hernández University. In a paper published in the journal Frontiers in Molecular Biosciences, the authors demonstrate the role of estrogen - a hormone that presents its highest levels in women of reproductive age - in the cells surrounding [...]
This upcoming September, EMHA team will be visiting the British capital city of London in order to participate in the MTIS congress organized by Migraine Trust. EMHA will be participating in the activities held during the Congress such as communications meetings, active participation on roundtables and of course an EMHA booth by Board members and Staff will be found at MTIS Exhibition Hall! We are very excited about the event and looking forward to being in London already.
Spotted Olivia Serratosa (EMHA past Communication and Social Media expert) and Isabel Colomina (AEPAC President in Spain) at Brussels to assist to the EPF General Assembly the past month of May.
Novartis marks a new era for migraine patients with the EU approval of Aimovig®, a first-of-its- kind treatment specifically designed for migraine prevention Jul 30, 2018 Novartis announced today that the European Commission (EC) approved Aimovig® (erenumab) for the prevention of migraine in adults experiencing four or more migraine days per month. Aimovig is the first and only treatment specifically designed for migraine prevention to be approved in the European Union, Switzerland, the US and Australia. It works by blocking a receptor called the calcitonin gene-related peptide receptor (CGRP-R) which plays a critical role in mediating the incapacitating pain of migraine. [...]
