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Migraine Atlas by AEMICE

Olivia Serratosa2018-11-14T19:06:40+00:0014/11/2018|Categories: News|Tags: awareness, migraine, News|

AEMICE together with Universidad de Sevilla (Seville University) and Novartis and a scientific committee of expert neurologists has created the "Migraine Atlas 2018" which reflects the real situation of the 4.5 million people who suffer from migraine in Spain! Unlike other studies "Migraine Atlas" includes the patients and also their families perspective about their condition, the healthcare system, effectivity of treatments, psicological aspects, limitations within their social lives, at the workplace, at home, self-medication and or fears and hopes, all these collected through questionnaire done to more than 2.500 people with migraine. Moreover, the inform shows an analysis of the scientific lecture and other [...]

Congratulations Kalina!!

Olivia Serratosa2018-11-09T14:01:03+00:0009/11/2018|Categories: Events, News|Tags: Advocacy, Awards, Cluster Headache, migraine|

We would like to give the warmest and biggest congratulations to our Board Officer and Cluster Headache Delegate, Kalina Tyminski!!! We are beyond proud to announce that Mrs. Tyminski just received a Certificate of Commendation for Young Volunteer Advocate from the EFNA Advocacy Awards 2018. Thank you for all your hard work, dedication, outstanding contribution and always enormous effort for our cause. Keep the great work!

Master of Headache Disorder

Olivia Serratosa2018-10-26T14:01:11+00:0026/10/2018|Categories: News|Tags: headache, Masters, migraine|

Copenhagen University is now offering a Master on Headache Disorders. It´s a continuing professional development programme for healthcare professionals. The programme requires a minimum of 6 individual visits to Copenhagen, Denmark over a two-year period: Modules 1 to 4 are organized with an e-learning self-study period followed by one week of face-to-face sessions at University of Copenhagen. Module 5 is a three week clinical course at the Danish Headache Centre. Module 6 is the final module. This module is comprised of a master’s thesis, which is completed with an oral examination in Denmark. This medical master’s programme consists of modules covering headache [...]

Migraine Association of Ireland

Olivia Serratosa2018-10-19T12:26:46+00:0019/10/2018|Categories: Associations, Events, News|Tags: Irish Association, migraine, News|

Migraine Awareness Week 2018 MAI held an accredited Health Care Professional Seminar, during which two international speakers presented on Migraine: Diagnosis and Treatment, and the Development of the new Anti-CGRP medication. Prof. Lars Edvinsson and Prof. Allan Purdy, both members of the IHS, followed this up by doing a webinar for members of the Irish Pharmacy Union In conjunction with this, MAI has been running a campaign ‘A Headache a Day is not Okay’ to encourage migraineurs to consult with their pharmacist regarding medication and treatment for migraine, while avoiding Medication Overuse Headache. MAI is also encouraging pharmacists to build [...]

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How to access innovative treatments by FindMeCure Foundation

Olivia Serratosa2018-10-19T12:11:41+00:0019/10/2018|Categories: Associations|Tags: FindMeCure, migraine, Widget|

FindMeCure Widget Medical science has been rapidly advancing in the recent decades and we can prove that with many examples: new therapies for diabetes, the first vaccine for the prevention of cervical cancer, oral treatments for Hepatitis C curing more than 90% of the cases, the first Lupus drug in 50 years, personalized medicines to treat the most dangerous types of skin cancer, genome editing, immunotherapy eradicating cancer cells, and many many more. And we all remember the end of AIDS and how medicine turned the HIV infection into a chronic condition that no longer threatens one’s life. Ask scientists [...]

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#MoveForMigraine

Olivia Serratosa2018-10-18T12:00:15+00:0018/10/2018|Categories: Associations, News|Tags: campaign, migraine|

#MoveForMigraine Migraine remains an overlooked and misunderstood condition in many parts of Europe, including Belgium. The disease suffers from a lack of recognition and understanding, even from the first concerned parties (patients, caregivers, employers, etc.). This comes at a significant burden for the patients and at a high cost for society (1,650,000 working days lost every year in Belgium). #Move4Migraine is an independent, multidisciplinary platform that brings patients and actors from the healthcare, labour world and civil society together. Mik Ver Berne, chair of the Belgian Headache Association and member of the European Migraine Headache Alliance (EMHA), participates in the [...]

Lilly Receives Positive CHMP Opinion for Emgality

Olivia Serratosa2018-10-17T12:24:24+00:0017/10/2018|Categories: Industry, News|Tags: approval, headache, migraine, New treatment, Success|

INDIANAPOLIS, Sept. 21, 2018 Lilly Receives Positive CHMP Opinion for EmgalityTM (galcanezumab) for the Prophylaxis of Migraine in Adults Eli Lilly and Company announced today that the European Medicines Agency's (EMA) Committee for Medicinal Products for Human Use (CHMP) has issued a positive opinion for Emgality TM (galcanezumab) for the prophylaxis of migraine in adults who have at least four migraine days per month. TM In June 2018, Lilly announced the intended brand name, Emgality, was conditionally accepted by the U.S. Food and Drug Administration (FDA). Emgality is a humanized monoclonal antibody specifically designed to bind to the calcitonin gene-related peptide (CGRP), blocking its [...]

European Civic Prize on Chronic Pain

Olivia Serratosa2018-10-16T17:43:16+00:0016/10/2018|Categories: Events, News|Tags: chronic pain, headache, migraine, prize|

Active Citizenship Network launch the second edition of the bi-annual research-project at the European level “EU Civic Prize on Chronic Pain - Collection of good practices” with the aim to continue to give evidence on existing good practices in several European countries in terms of the struggle against pain. Aims of the project Giving continuity to the successful collection of good practices “EU Civic Prize on Chronic Pain - Collection of good practices” - First Edition. Enriching European and national experiences, expertise, data and benchmarking on chronic pain. Fostering the multi-stakeholder platform of operators of good practices on pain, created in [...]

Patient Solidarity Day 2018

Olivia Serratosa2018-10-16T17:32:21+00:0016/10/2018|Categories: Events, News|Tags: association, join forces, Patient, solidarity, support|

On Friday 7 December 2018, patient advocates and stakeholders from all world regions will stand together, united in a celebration of Patient Solidarity Day (PSD). This year’s theme is about ‘Safe Medication and Healthcare for All’ and it aims to raise awareness on these critical global public health issues and advocate for access to safe, quality and appropriate medicines and treatments as warranted by patients' conditions. The Key Messages about Patient Solidarity Day: This Patient Solidarity Day patient advocates across the globe are coming together in solidarity to raise awareness on and advocate for access to safe medication and healthcare for all. Patient exposure [...]

Lilly’s Emgality Approved

Olivia Serratosa2018-10-15T18:00:28+00:0015/10/2018|Categories: Industry, News|Tags: Approved, Hope, Migraine Treatment, New, Preventive Treatment|

INDIANAPOLIS, Sept. 27, 2018 Eli Lilly and Company (NYSE: LLY) announced that the U.S. Food and Drug Administration (FDA) has approved Emgality™ (galcanezumab-gnlm) 120 mg injection for the preventive treatment of migraine in adults. Emgality offers a once-monthly, self-administered, subcutaneous injection. Emgality is contraindicated in patients with serious hypersensitivity to galcanezumab-gnlm or to any of the excipients. Emgality will be available to patients shortly after approval. Patients with commercial insurance are candidates to receive Emgality for up to 12 months free as part of Lilly's patient support program (governmental beneficiaries excluded; subject to terms and conditions*). Emgality will be available for pickup at retail pharmacies. Migraine [...]

EPF – European Patient Forum

World Health Organization

European Union

EHF- European Headache Federation

EMA- European Medicines Agency