Migraine Advocacy Toolkit
Spotlight on migraine services and access to appropriate medicines toolkit
Optimising patient involvement to improve migraine patient outcomes
The Toolkit is a best-in- class educational resource for migraine patient organizations and associated stakeholders. Its primary purpose is to support migraine patient organizations in advancing the role of the patient voice in enhancing access to migraine services and appropriate medicines.
The World Health Organisation (WHO) ranks migraine as one of the most debilitating of all illnesses and in the Global Burden of Disease Study, migraine was found to be a leading cause of years lost due to disability.
Who is the Toolkit for?
It is hoped that by using the Toolkit, migraine patient organizations will be able to help reduce the burden of disease through supporting innovation in migraine services, care, and treatment. The Toolkit comprises original co-created copy and tried and tested educational materials from leading organizations such as WHO, European Patients Academy on Therapeutic Innovation (EUPATI), and Health Technology Assessment International´s (HTAi) Patient and Citizen Involvement in HTA Interest Group (PCIG). It also provides links to a wide range of relevant organizations, such as country-specific health technology assessment (HTA) bodies, to further direct and inform the user.
Who developed the Toolkit?
This resource was created by KYNE, a health communications agency, in partnership with the European Headache Alliance (EMHA), the European Federation of Neurological Associations (EFNA) and Migraine Action (MA). The development of the Toolkit was funded by Novartis. Novartis also retains responsibility for ensuring that the content of the Toolkit adhere to all relevant regulations.
The Toolkit was launched at the end of November 2017 just in advance of the European Headache Federation Congress. It is available for use by migraine patient organizations and associated stakeholders. Later in 2018, it will be hosted on a publicly accessible website later in 2018.
Translations of the Toolkit are also being developed in 2018.