MHIPAS 2018 SPECIALIST FEEDBACK
During the last day of MHIPAS 2018, we were very interested in knowing what the attendees’ general thoughts about the summit were. So we decided to ask them a few questions and here is the feedback we received.
The EHA team would like to thank again everyone who assisted to the First Migraine and Headache International Patient Advocacy Summit and made it a success.
Estefanía Fernández describes her relationship with a disease that has accompanied her since she was a teenager, and how she has learned to accept it in her life.
“The pain is like someone is hitting my brain with a hammer,” says Estefania.
She is 25 years old and works in an advertising agency, but she is also part of the 10% of the world population suffering from migraine.
However, it is a different condition, known by the medical community as menstrual migraine. “When I started to experience migraines, the symptoms lasted from several hours to a day”.
Nowadays, her episodes can last up to five days before her menstrual period and from one day to three days after her period finishes. She does not sleep until the symptoms have passed and sometimes they start while she is sleeping.
She describes it as a debilitating condition. And the fact is that it is, since more than 90% of people who suffer from it cannot work or develop during a crisis, according to the World Health Organization (WHO).
Trying to explain to others why she feels exhausted during those moments has become almost impossible. “I have been advised of everything; exercise, yoga, medicinal plants, but nothing works, finally I have learned to live with it,” she says resignedly.
SCALE OF PAIN
Stephanie mentions that the lowest pain she can experience in a migraine is worse than a headache during sinusitis, cramps, throat infection, surgeries or stones. “When the pain starts, it focuses on a specific spot on my right eye. This pain comes accompanied by an extreme sensitivity to light and often nausea ” she says.
Most people with migraine choose to self-medicate and the numbers confirm it: only 4% are looking for a pain specialist. She, for her part, says she has not found a cure for her badness but has a medical guide to reduce the damage. “Eating cheese, chocolates or drinking beer, for example, makes the symptoms worse,” she says. The best thing you can do if the pills are not affectionate is to turn all the lights off, close the doors and windows and rest.
The responsibility for the content and authorship of this article is RPP.
Source: RPP-Healthy Space
AEPAC- Asociación Española de pacientes con cefalea
Members of the Spanish Association of Patients with Headache disorders AEPAC , tell their experiences with this disease.