EMHA White Paper

Strategic Advocacy Framework to Improve
Migraine Care and Support
A European Call to Action on Migraine

Strategic Advocacy Framework to Improve Migraine Care and Support

Migraine is a complex and often debilitating bio-neurological disorder affecting a significant portion of the global population. Despite being the second leading cause of years lived with disability globally, as reported in the 2019 Global Burden of Disease Study, migraine remains underrecognized and undertreated. This lack of attention results in delayed diagnoses, inadequate treatment, and substantial socioeconomic costs.

Policymakers have a unique opportunity to implement changes that can significantly improve the lives of people with migraines while reducing the economic burden associated with inadequate care.

This white paper advocates for the inclusion of migraine in the 2025 EU Neurological Health Strategy, stressing the importance of treating it as a serious neurological disorder that demands coordinated action at both European and national levels. Drawing on conclusions from a 2024 policy roundtable at the European Headache Congress, it highlights key priorities to improve migraine care across the EU, including enhancing medical education, streamlining care pathways, implementing workplace interventions, and improving access to innovation and commitment on policy recognition.

The paper also serves as a tool for national advocacy, supporting alignment between national and EU strategies. By encouraging collaboration among stakeholders —patient groups, healthcare professionals, and policymakers— it aims to build a more integrated and equitable approach to migraine care. As the SANT Committee prepares its hearing, this document provides timely, evidence-based recommendations to address persistent gaps in migraine treatment and policy.

EHC Congress 2024
CONTRIBUTORS

Emphasizing the collaboration between patients, healthcare professionals —including general practitioners, pharmacists, and neurologists—, policymakers and corporate leaders can create a holistic framework for tackling migraine care at multiple levels.

Dehenna Davidson

Former UK MP & Migraine Advocate

Dr. Guusje ter Horst

Former Dutch Minister & Migraine Policy

Dr. Reto Agosti

Neurologist & Politician, Zurich Cantonal Council

Ms. Jannet Vaessen

CEO of Women Inc. & Patient Advocate

Prof. Peter Goadsby

Professor of Neurology, UK

Prof. Messoud Ashina

Director, Human Migraine Research Unit, Denmark

Ms. Elena Ruiz de la Torre

Executive Director, EMHA

Dr. Olga Fidalgo

Policy & Health Strategy Expert (Moderator)

Panelists attended the roundtable in a personal capacity, not on behalf of any organization

HIGHLIGHTS & RESOURCES

Three priorities to enhance migraine care pathway

This document highlights three priority areas where patients, patient advocates, healthcare professionals, and policymakers can work together to improve migraine care, focusing on the most pressing needs and high-impact opportunities.

Addressing these recommendations will lead to significant improvements in migraine treatment and management, ultimately enhancing the lives of millions while reducing the economic burden associated with inadequate care.

VIDEO TESTIMONIALS

Advocating for Better Migraine Care

To further amplify the call for improved migraine care, this document features a series of video testimonials from patient association representatives, healthcare professionals, and policymakers. Through their voices, they advocate for urgent action to close gaps in migraine management and emphasize the need for a coordinated, patient-centered approach across the world.

MEDIA OUTREACH

Download and read the press release

Advocacy Toolkit 

EMHA Advocacy Toolkit

Documents available related to the White Paper for use by EMHA members, international associations, and other stakeholder partners in local advocacy strategies and in driving the transformation of migraine care.

CONTRIBUTORS

This document has been endorsed by the following associations

The White Paper has been endorsed by multiple institutions, reflecting broad support across the migrain ommunity, healthcare sector, and policymaking bodies.

This initiative has been possible thanks to AbbVie's support.

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