We are more than glad to say that Migraine Brighter Future campaign for migraine day of action was a success. The campaign had great reach and engagement in social media reaching nearly 6.000 people on Facebook, 17.000 in Twitter and approximately 1.000 in Instagram. 86% of engagement in Facebook, 40% on Twitter and 46% on Instagram. Even Instagram which is a brand new platform for the EMHA had really good results! These metrics are overwhelming, encouraging and overall an example of how many people are looking forward to a better future for migraine, how many of them are willing to mobilize society and help on raising awareness. There where participants collaborating in the campaign from places all around the world, even from Mexico and the United States as you can see in the image gallery below. We need to keep up the work and really try to have an active community always looking forward to spreading the word and make everyone learn about what this severe condition is about! Below you can download the document showing exact metrics on the campaign and also the powerpoint presentation with the #MigraineBrighterFuture featuring #WeWontRest Efpia visuals. Thanks to everyone who participated and supported the campaign!
This year Migraine Day of Action will be held on September 12th and EMHA has created an initiative called #MigraineBrighterFuture ¿What is #MigraineBrighterFuture? It´s an online campaign which involves patients all around the globe and everybody who would like to help on raising awareness about Migraine. ¿How to participate? September 12th participants will need to upload a photo on social media with a caption including the hashtag #MigraineBrighterFuture and a sentence which starts with the followings words: “For the chance to…”. This sentence needs to be some kind of action that sounds completely normal and easy to accomplish for anyone who reads it but a complete challenge for someone suffering from migraine. An example of this will be “For The Chance To get back to work”. Everyone goes to work every day but someone who suffers from migraine can have a crisis during their work but no one in the workspace will notice or really understand that is not a simple headache. We would love everyone to participate in this project so save the date and help us spread the word!
The European Migraine and Headache Alliance (EMHA) is launching a European project aimed to understand the situation of migraine workers within companies.
The Toolkit is a best-in- class educational resource for migraine patient organisations and associated stakeholders.
This survey is about the access to healthcare for Cluster Headache patients in EU countries.
IHC2017 will include plenary sessions, an extensive poster display and in-depth scientific presentations showcasing new developments in the advancement of headache science, education, and management.
This patient guide for clinical trials is for those who are interested in participating in a trial but do not know how to get started and what to look out for. Clinical trials can be a mutually beneficial activity that provides an opportunity for the patient to receive compensation, experience expert care, receive free treatment and help contribute to medical innovation.
European Union Civic Prize on Chronic Pain, organised by the Active Citizenship Network
The Eurolight project is the first at European Union level to assess the impact of headache disorders, and also the first of its scale performed by collaboration between professional and lay organizations and individuals. Here are reported the methods developed for it.