What is the survey about? This survey has been prepared by the CHSIG of the EHMA to gather updated information about the impact that Cluster Headaches has on the work life of the CH sufferers. How much time will it take? This survey consists of 30 questions, some of which have tick-box options. It should take around 12 minutes to complete. The survey will be open until 28th February. How many languages are available? The survey is available in 10 languages! English, German, Italian, Spanish, French, Swedish, Danish, Dutch, Polish and Finnish Will my identity be published? The survey is anonymous! To learn everything about the survey, how the responses will be used, if you can take part in… it please visit this link!
Welcome to Migraine and Work Survey. The objective of this study is to understand the situation of employees with migraine and to compare the situation in the different participating countries. The obtained data will be used to inform the implementation of actions to improve the working environment and to promote the maximum integration of the employee with migraine within their company. Finally, a second phase will look to the implementation of preventive and adaptive measures with a common benefit for: The worker The healthcare professional The employer The survey is available in 6 different languages: English Spanish French German Italian Portuguese Link to the survey: https://es.surveymonkey.com/r/FCKZ3GR?lang=en * This survey has been carried out with the scientific endorsement of the Spanish association of specialists in occupational medicine AEEMT.
We are more than glad to say that Migraine Brighter Future campaign for migraine day of action was a success. The campaign had great reach and engagement in social media reaching nearly 6.000 people on Facebook, 17.000 in Twitter and approximately 1.000 in Instagram. 86% of engagement in Facebook, 40% on Twitter and 46% on Instagram. Even Instagram which is a brand new platform for the EMHA had really good results! These metrics are overwhelming, encouraging and overall an example of how many people are looking forward to a better future for migraine, how many of them are willing to mobilize society and help on raising awareness. There were participants collaborating in the campaign from places all around the world, even from Mexico and the United States as you can see in the image gallery below. We need to keep up the work and really try to have an active community always looking forward to spreading the word and make everyone learn about what this severe condition is about! Below you can download the document showing exact metrics on the campaign and also the powerpoint presentation with the #MigraineBrighterFuture featuring #WeWontRest Efpia visuals. Thanks to everyone who participated and supported the campaign!
This year Migraine Day of Action will be held on September 12th and EMHA has created an initiative called #MigraineBrighterFuture ¿What is #MigraineBrighterFuture? It´s an online campaign which involves patients all around the globe and everybody who would like to help on raising awareness about Migraine. ¿How to participate? September 12th participants will need to upload a photo on social media with a caption including the hashtag #MigraineBrighterFuture and a sentence which starts with the followings words: “For the chance to…”. This sentence needs to be some kind of action that sounds completely normal and easy to accomplish for anyone who reads it but a complete challenge for someone suffering from migraine. An example of this will be “For The Chance To get back to work”. Everyone goes to work every day but someone who suffers from migraine can have a crisis during their work but no one in the workspace will notice or really understand that is not a simple headache. We would love everyone to participate in this project so save the date and help us spread the word!
The European Migraine and Headache Alliance (EMHA) is launching a European project aimed to understand the situation of migraine workers within companies.
The Toolkit is a best-in- class educational resource for migraine patient organisations and associated stakeholders.
This survey is about the access to healthcare for Cluster Headache patients in EU countries.
IHC2017 will include plenary sessions, an extensive poster display and in-depth scientific presentations showcasing new developments in the advancement of headache science, education, and management.
This patient guide for clinical trials is for those who are interested in participating in a trial but do not know how to get started and what to look out for. Clinical trials can be a mutually beneficial activity that provides an opportunity for the patient to receive compensation, experience expert care, receive free treatment and help contribute to medical innovation.
European Union Civic Prize on Chronic Pain, organised by the Active Citizenship Network
The Eurolight project is the first at European Union level to assess the impact of headache disorders, and also the first of its scale performed by collaboration between professional and lay organizations and individuals. Here are reported the methods developed for it.