Stephani Sutherland, PhD, is a neuroscientist, yogi, and freelance writer in Southern California. Migraine and other severe headache disorders affect about a billion people worldwide each year, but awareness of these conditions is insufficient, and sufferers are often stigmatized by healthcare providers and by society in general. As a result, people often go years without a diagnosis or do not receive appropriate treatment. And, the personal preferences of patients are seldom considered in current treatment guidelines. A neurological disease Everyone has experienced a headache at some time in their lives, be it from the flu, a head injury, or simply [...]
This year Migraine Day of Action will be held on September 12th and EMHA has created an initiative called #MigraineBrighterFuture ¿What is #MigraineBrighterFuture? It´s an online campaign which involves patients all around the globe and everybody who would like to help on raising awareness about Migraine. ¿How to participate? September 12th participants will need to upload a photo on social media with a caption including the hashtag #MigraineBrighterFuture and a sentence which starts with the followings words: "For the chance to...". This sentence needs to be some kind of action that sounds completely normal and easy to accomplish for anyone who reads it [...]
Novartis marks a new era for migraine patients with the EU approval of Aimovig®, a first-of-its- kind treatment specifically designed for migraine prevention Jul 30, 2018 Novartis announced today that the European Commission (EC) approved Aimovig® (erenumab) for the prevention of migraine in adults experiencing four or more migraine days per month. Aimovig is the first and only treatment specifically designed for migraine prevention to be approved in the European Union, Switzerland, the US and Australia. It works by blocking a receptor called the calcitonin gene-related peptide receptor (CGRP-R) which plays a critical role in mediating the incapacitating pain of migraine. [...]
Patients claim their right to participate in Decision about their HEalth Patients have the right to participate in making decisions about their health, either through patient organizations in public policies that affect them or through the sharing of information and consensus with their doctor, for example, about what treatment to follow. This is one of the main proposals of the Platform of Patient Organizations on the occasion of the European Day of Patients' Rights 2018. To achieve this level of participation, patients must advance in the rights of information, the right of access and the right of free choice, which [...]
IAPO is organising a Patient solidarity Day the 2nd of December! If you’re taking part in a Patient Solidarity Day activity, upload your photos from activities and events to help raise awareness and inspire others and at the same time stand the chance of being next year’s feature photo. For more information go in to IAPO´s website Keep supporting the Patient Solidarity Day campaign in other ways; Sign up to the Patient Solidarity Day Thunderclap Promote Patient Solidarity Day on social media – like, share and retweet using #PSD2017 Share the campaign key messages on social media using the #PSD2017 Promote the campaign [...]
The Platform of Patient Organizations Congress: Challenges of healing in times of transformation, 5 and 6 October in the city of Madrid.