Associations

Migraine Association of Ireland

Migraine Awareness Week 2018 MAI held an accredited Health Care Professional Seminar, during which two international speakers presented on Migraine: Diagnosis and Treatment, and the Development of the new Anti-CGRP medication. Prof. Lars Edvinsson and Prof. Allan Purdy, both members of the IHS, followed this up by doing a webinar for members of the Irish …

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How to access innovative treatments by FindMeCure Foundation

FindMeCure Widget  Medical science has been rapidly advancing in the recent decades and we can prove that with many examples: new therapies for diabetes, the first vaccine for the prevention of cervical cancer, oral treatments for Hepatitis C curing more than 90% of the cases, the first Lupus drug in 50 years, personalized medicines to …

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#MoveForMigraine

#MoveForMigraine Migraine remains an overlooked and misunderstood condition in many parts of Europe, including Belgium. The disease suffers from a lack of recognition and understanding, even from the first concerned parties (patients, caregivers, employers, etc.). This comes at a significant burden for the patients and at a high cost for society (1,650,000 working days lost …

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EPF publishes a guide for patient organisations on the new Data Protection Regulation

The new Regulation on personal data protection (EU/2016/679) was published in May 2016 and will apply from May 2018. It provides more rights to citizens to be better informed about the use made of their personal data, and gives clearer responsibilities to people and entities using personal data. Patients’ fundamental right to protection of their health data …

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European Patients’ Rights Day, TODAY, April 18

Patients claim their right to participate in Decision about their Health Patients have the right to participate in making decisions about their health, either through patient organizations in public policies that affect them or through the sharing of information and consensus with their doctor, for example, about what treatment to follow. This is one of …

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FACING MIGRAINE TOGETHER

Finish headache magazine Text: Mirva Hämäläinen (Ed. Herttakaisa Kettunen)This article was first published in Finnish in Migraine Association of Finland’s magazine Päänsärky. It was translated by volunteer Ms Venla Kallio. Ms Mirva Hämäläinen is also a volunteer in Migraine Association of Finland   For her master’s thesis, Mirva Hämäläinen collected reports from people with migraine about …

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